- - Jesy Nelson Believes Her 8-Month-Old Twins Will 'Defy All the Odds' and Live Past 2 Years Old amid Journey with Severe Muscle Disease

Angel SaundersFebruary 5, 2026 at 7:05 AM

0

Jesy Nelson and her twin girls

Jesy Nelson/Instagram; Great Company with Jamie Laing/Youtube

Jesy Nelson is hopeful for her baby girls' futures

The Little Mix singer welcomed twin girls, Ocean Jade and Story Monroe, in May 2025

Since then, they have been diagnosed with a rare muscular disorder

Jesy Nelson is staying hopeful for her 8-month-old twin daughters amid their journey with a severe muscular disease.

Weeks after sharing that her baby girls, Ocean Jade and Story Monroe, were diagnosed with spinal muscular atrophy (SMA) Type 1, she said she believes her girls will "defy all the odds" and live past the age of 2.

During the Wednesday, Feb. 4, episode of Jamie Laing’s Great Company podcast, the 34-year-old Little Mix singer explained more about her daughters' condition.

“So spinal muscular atrophy is a muscular wasting disease, and what it does is, well, they don't have a gene that we all have in our body. So because of that, their muscles are deteriorating and wasting away,” she said.

Jesy Nelson and Zion Foster with their twin daughters

Jesy Nelson/Instagram

Nelson and her former fiancé, musician Zion Foster, welcomed their twins prematurely on May 15, 2025, weeks after the new mom underwent emergency surgery. She shared news of their diagnosis last month.

“And if you don't get them treatment in time, eventually the muscles will all just die, which then affects the breathing, the swallowing, everything, and they will die before the age of 2,” she continued on the podcast on Wednesday.

After Laning expressed sympathy, the mother of two replied, “I just have to accept it, and now I just try and make the best out of this situation.”

She added that her girls “are the strongest, most resilient babies.”

“I really believe that they are going to defy all the odds. I really believe that because they already have. It's mad. They were in my belly. They had TTTS [Twin-to-Twin Transfusion Syndrome],” Nelson said.

The rare and serious syndrome affects multiples who “share one placenta (afterbirth) and a network of blood vessels that supply oxygen and nutrients essential for development in the womb,” per John Hopkins Medicine.

The condition creates an imbalance of nutrients prior to their birth.

“I see everything through a completely different lens ‘cause I'm like, they had that, but they also had SMA, and then they just went on to fight it all,” Nelson said of her twins.

During their conversation, the English pop star mentioned that she found out about the spinal muscular atrophy (SMA) Type 1 diagnosis while her twins were in the hospital’s neonatal unit after they were born prematurely at 31 weeks due to the TTTS.

Jesy Nelson at The O2 Arena on December 11, 2021 in London Karwai Tang/WireImage

Full term pregnancies are around 39 to 40 weeks.

In an emotional video shared to her Instagram account on Jan. 4, "after the most grueling three, four months, and endless appointments,” Nelson disclosed her daughters’ muscular disorder.

“We were told that they’re probably never gonna be able to walk, they probably will never regain their neck strength so they will be disabled. And so the best thing we can do right now is to get them treatment and then just hope for the best,” she said.

— sign up for PEOPLE's free daily newsletter to stay up-to-date on the best of what PEOPLE has to offer​​, from celebrity news to compelling human interest stories.

Nelson called the past three months “the most heartbreaking time of my life,” adding that she felt like she was “grieving the life I thought I was going to have with my children.”

Before ending, Nelson said she was grateful her babies were still with her and urged other parents to bring their children to the doctor at the first sight of any symptoms because “time of the essence” when it comes to saving a life.

on People

Original Article on Source

Source: “AOL Entertainment”